NATT Board of Directors
Randy Fenninger, President
Randy was hospitalized with a pulmonary embolism in
2002 following an airplane trip. He was subsequently diagnosed with factor V
Leiden. Randy is President of MARC Associates, a
Washington, D.C.
government relations firm. He lives in Vienna,
VA with his wife and
2 sons.
Lori Preston, Vice President, Chair of Communications Committee
Lori
is an MBA graduate from the Johns Hopkins University. She has extensive
experience in marketing, writing, fundraising and event planning at
organizations including the Johns Hopkins Children's Center, the Johns Hopkins
Bloomberg School of Public Health and the American Red Cross. Lori was diagnosed
with homozygous Factor V Leiden during her pregnancy in 1999. She is passionate
about raising awareness of thrombosis and thrombophilia because the disorder has
affected several generations of her family and friends.
Tom Hogan, Secretary, Member-Education and Communications Committees
Tom
had been serving in the U.S. Navy's Submarine Force when he suffered an
unexplained DVT in 1992 that was accompanied by a PE. After 6 months of Coumadin
therapy, he was returned to full duty. In 1995, he experienced a second
unexplained DVT. In 1996, he was diagnosed with homozygous factor V Leiden and
high homocysteine levels. Now retired from the Navy, Tom, his wife and 2
children live in Connecticut. Both his children are heterozygous for factor V
Leiden.
Kathy Early, Treasurer
Kathy's daughter, Jessica, developed a severe blood clot in her liver at the age of 20. She was later found to be heterozygous for factor V Leiden. Kathy is committed to educating people – especially young women – about the dangers of blood clots. Kathy serves as a member of the North Carolina National Guard and lives in Arden, NC.
Stephanie Davis, Member-Fundraising Committee
Stephanie is a fund-raising executive with broad experience in non-profit management, program development and evaluation and marketing and public relations. She is currently the Senior Director of Development for the Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, Pediatric Oncology. Most recently, she was Director of Development for the Johns Hopkins Bioethics Institute. Ms. Davis holds a master's degree in medical social work from the University of North Carolina and a bachelor of arts from the University of Colorado. She is committed to raising awareness of thrombosis and thrombophilia as she suffered bilateral deep vein thrombosis following an airplane trip.
Mark Jablonski, Past President I
Mark is a business development executive with extensive consulting and project management experience in the pharmaceutical industry. Mark, his wife Georgianna and 2 of their 3 children have the Factor V Leiden gene mutation.
Arla Johnson, Member-Board Development Committee
Arla
began to learn about the issues surrounding clotting events when her husband
developed a pulmonary embolism while being treated for a lingering illness in
the fall of 2005. She has served on various not-for-profit boards and devoted
over 30 years to leadership roles at all levels within the American Cancer
Society. Arla recognizes the importance of education and awareness to help
prevent and provide early treatment for clotting disorders. She and her husband
have 3 children and 5 grandchildren. They live in the woods in northern
Minnesota.
Pat Koppa, Chair of the Board Development and Governance Committee
Pat
is President of Public Health Consultants, LLC, a Twin Cities company that
fosters positive collaborative relationships and health initiatives across
public, private and nonprofit sectors. Prior to starting her business, Pat
worked for over 25 years in executive positions with non-profit organizations
and has broad experience across the chronic disease spectrum. Her professional
commitment to NATT is based on her desire to see thrombosis and thrombophilia on
the national health care agenda. Pat’s experience with deep vein thrombosis
(DVT) after hip surgery drives her passionate commitment to the NATT mission.
Lynn Levitt, Vice Chair of Education and Communications Committee Member
She became involved in NATT at the end of 2003 while seeking answers to blood clotting disorders at the Center.
Lynn has over 8 years of marketing and event coordination experience. Besides serving on the NATT Board of Directors, she serves as Co-Chair of the Education Committee, member of the Communications Committee and as NATT's Volunteer Coordinator. She is dedicated to spreading awareness about thrombophilia and offering support to other blood clot sufferers and their families.
Stephan Moll, Chair of Medical and Scientific Advisory Board
Dr. Stephan Moll is an Associate Professor at the University of North Carolina in the Department of Medicine, Division of Hematology-Oncology and heads the UNC Thrombophilia Program. Dr. Moll is a clinician, clinical researcher, and clinical educator. Most of his time is spent seeing patients with clotting disorders, conducting clinical research relating to thrombosis and thrombophilia, and educating health care providers, patients and public in various ways on thrombosis and thrombophilia. Dr. Moll has 4 children. He likes hiking, bicycling and traveling.
Elizabeth Varga, Chair - Education Committee, Member Medical and Scientific Advisory Board
Liz
learned she had factor V Leiden in 2000. She was tested due to a family history
of the disorder. Liz is a certified genetic counselor and has 5 years of
experience in educating patients, families, health care providers and the public
about inherited disorders and disease prevention, specifically as related to
thrombophilia. As the Chairperson of the NATT Education Committee, she helps
develop and maintain the organization’s web site, produces and edits numerous
patient education materials and presentations and organizes and implements
information seminars for health care providers and the public. She also serves
as a liaison to the Centers for Disease Control and Prevention to foster
collaboration among public and private groups involved with preventing or
reducing the complications of clotting disorders. Her commitment to NATT is
based on her desire to see improvements in health care education related to
thrombosis and thrombophilia. Liz currently works as a genetic counselor and
research coordinator at Children’s Research Institute in Columbus, OH.