Learn More About Thrombosis and Thrombophilia

Doctors

A primary goal of NATT is to provide education and information to individuals and families affected by blood clots and blood clotting disorders.  NATT has collected extensive stories from patients and family members on living with with Thrombosis and Thrombophilia, assembled frequently asked questions and created publications addressing specific blood clot issues.

NATT Publications

This Month's Featured Article

Owning My Coagulation Health Management by David Henry

David HenryLike many of you who are reading this, I am a Warfarin “lifer.” Also, like many of you, I have experienced the frequent delays and inconvenience of waiting at busy lab sites for the brief procedure resulting in my PT-INR ratios. As a busy professional, I felt a growing need to challenge this “traditional” approach. I found my answer in taking ownership of my coagulation health management through patient self-testing.

Patient self-testing involves using a device similar to those used for testing blood glucose levels. I learned that I could do my PT-INR testing at home, on my schedule and with highly accurate results. Knowing this, I turned to the Internet to research how I could make this work. I learned about coagulation monitors on manufacturer web sites. When I could not locate a local ‘in-network’ DME (Durable Medical Equipment) provider, I chose one via the Web. This DME provider became a one-stop source for the coagulation monitor, supplies, physician coordination, 3rd party insurance reimbursement and training.

Initially, I experienced some reimbursement delays due to lost files and a time-consuming approval process. Eventually, however, my insurance plan agreed to cover all of my DME equipment and supplies and processes it as ‘in-network’. I have also developed my own Excel spreadsheet with charts to log and manage my coagulation levels. I coordinate my testing results and dosage adjustments with my specialist by phone. Patient self-testing may not be appropriate for everyone. However, I like the flexibility and satisfaction that I now have from owning my coagulation health management. The key is in making the patient self-testing process easier for all who desire the benefits of this approach. I challenge NATT to lead the advocacy charge in overcoming obstacles with public and private 3rd party payers and in documenting the health and economic benefits.

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